I wish I had more good news for you.
There are a couple of good things which I will BLEND with each test...
We ventured to do the right heart catheterization.
The pressures are normal... ZERO PULMONARY HYPERTENSION....
I am extremely grateful for this more than you know.
A drastic turn when before all the Echocardiogram showed elevated right atrial pressure.
However, I am sad to say that I am still in right sided heart failure.
Blood work showed low number in CO2 (Carbon dioxide)...
Blood work showed higher levels of RBC (Red blood cells)...
Blood work showed low number for Ionized CA POC ( Calcium)...
Another test which was blood showed high levels of something else.... but can't remember which... it was geared towards my heart....
The only thing certain is that the right side heart failure is not from Pulmonary Hypertension.
So, we go back to eliminating table.
Is this from my lungs?
Or from the irregular heartbeat aka Atrial fibrillation?
5 days back to this specialist to figure this out.
MRI Results
No evidence of Multiple Sclerosis. Grateful for this.
The lesions new and old are from something called small vessel disease. "Fezekas" offers more information in the stages of this. I a have moved to stage 1.... the brain stem contains an area called the PON...
The Pon or mid brain connects to the Cerebellum. When this area is damaged by lesions breathing is affected, balance, speech, sexual drive aka arousal and sleep.
My report cites that more lesions are on the right side of the pon vs the left.
Brain stem is so small yet so critical. Unfortunately, their is no cure and treatment is extremely limited due to location.
There are no tumors, cancer, growths of any kind and no blood clots.
As far as my neck that has all together 7mm bone spurs that is causing the trachea to collapse more.
This is odd because normally bone spurs don't develop at C2-C3... this is extremely rare.
As far as the EMG goes abnormal.
This from the spinal issues no doubt and lesions in the right side of brainstem.
My body is broken.... so broken...
Living with pain day in, day out is hard...
Thoughts of why my own government could betray me, lie to me, and say PTSD caused everything you read above is angering to say the least.
They NEVER tried to validate what my body was going threw. They blamed me and left me out to dry ALONE.
I WILL NEVER UNDERSTAND THIS...
I will never understand who decided to put a value on me; then decide if I was worth their time to help me; or taxpayers money to save me...
In their eyes I will always be worthless....
Christina D. Thundathil
P.S. We are still waiting on the MRI from the Thoracic Spine....
