Chronic Illness

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Trying to Hold it Together When Your Body is Done

4 May 2021 2 minute read 0 comments Cje95

Recently the weather in Washington, DC has gotten a lot better. It has been sunny and the weather overall has been really nice. For a long time I could have sworn I was in Seattle with the grey overcast skies languishing around all the time. This wee...

Spoon Theory

30 Nov 2020 2 minute read 6 comments Cje95

Something that really seems lost with my generation is the idea you can be sick but not look sick. Having an invisible illness and a chronic one at that is an extremely hard thing to deal with. I am only 25 and have spent the last 7-8 years battling...

Health Update

24 Nov 2020 1 minute read 1 comment Cje95

I have been trying to post as consistently as I could hear but the last day or so I’ve struggled to keep up. There is a cold front moving across the US and the barometric pressure in Houston, Texas where I live is 30.13. Typically people who have the...

It’s the little things.

14 Nov 2020 1 minute read 5 comments QueerlyDisabled

Sorry I’ve been absent. Between another painful test, a super demanding job, and a nosebleed that tried to imitate that one scene in Carrie, I’ve been a little distracted.  I’m sitting in the barn, watching and listening to my horses eat, Radar in th...

I’m high maintenance.

9 Nov 2020 1 minute read 0 comments QueerlyDisabled

Not in the traditional sense of Coach bags and Louboutin shoes, but the sheer financial cost of chronic illness.  I’m lucky enough to have a great job with really affordable insurance for the whole family, but I can easily meet my deductible in the f...

My Personal Background that Led to Crypto Pt. 2

25 Aug 2020 3 minute read 2 comments Cje95

Last night I did my first post which covered the beginning of my health journey culminating in successfully having my posterior fossa decompression surgery. Sadly my health was not made to last as within a year (January 2017) I was back in Long Islan...